You all should be aware of just what is happening within research into dementia care. Some interesting and disturbing facts emerge about dementia and alzheimer’s research. I have deliberately placed the word you in bold and uppercase  YOU within this section. For us YOU and your needs are our prime objective unlike many of the professionals in dementia and alzheimer’s care and research.

There has been no new drug for care or cure since the year 2000 for  YOU

In Scotland there was £16.5 million spent of dementia research in 2023. No new drug for care or cure or digital reminiscence therapy accessible 24/7 for care has been made available for  YOU over many years.

Have YOU seen any tangible support accessible 24/7 for that money

Data shows that there was no new tangible aspects of support for YOU 24/7 in 2023   which could give YOU hope for the present and the future. YOU are provided with duplication of advice on how to live with dementia. All of that can be found with a Google search. No  tangible care therapy accessible 24/7 were created for YOU over that time.

Published research data does not identify the essential criteria that YOU need from research. Common sense would surely suggest that this must be most researchers starting point. Most research only looks at other more academic criteria. These relates to the process of research and their agendas. Very few researchers research the tangible contribution any research makes as a support for YOU today or tomorrow.

Where is YOUR health care and support from all this huge funds which are you would think raised for YOUR benefit

Surely if there is research funding at that high level spent each year there should be some payback for YOU. YOU are the actual people living with dementia and need tangible 24/7 support. But no that criteria and YOUR urgent requirements are not a research priority. The evidence clearly support this assertion.

So, the funding spent on dementia research is exactly that. It is spent on research. It is not funding to help people like YOU today living and dying with dementia and alzheimer’s. Dementia funding is spent on research. Some would say has as its main objective to keep all the researchers paid and in work. Not research for dementia which would have YOUR requirements firmly in mind. This each year should be to primary goal and outcome.  A clear  focus to produce tangible support for people living with dementia. This should be their number one focus. That is what You want from a large part of the £16.5 million spent on dementia research in Scotland in 2023.

 Water under the bridge and perhaps a great deal of money  also flowing down the river

There are hundreds of dementia organisations in Scotland duplicating effort and depleting funding

 Some uncomfortable facts  need to be said by someone

What is actually happening is that £16.5 million is spent on researchers and their organisations. When you look into these organisations which there are several hundred in Scotland you find the following.

1. nearly all class themselves as the leaders in dementia research and care
2. they all duplicate their content
3. they duplicate effort
4. most live in their own silos with blinkers on
5. they all focus on their own agendas not YOURS
6. they all provide the same “ how to live with dementia and all the materials that relate to dementia”
7. most have a chief executive or a management structure and people on their payroll. All have to be paid out of the £16.5 million of research funding. This operational cost leaves very little funding for the developments YOU urgently require.
8. they all justify their own existence to each other and YOU. They also pull the wool over YOUR eyes by shouting out loud that they are working  on YOUR behalf. They want YOU to trust them because they think they are the experts. We at Carney Heritage Productions recognise that YOU are the experts and it is YOUR needs that is our priority,
9. they publish biased information
10. most only speak to themselves
11. they all to date have not deliver tangible support and health care provision for YOU
12. all these different organisations, including the NHS, fragments the sector to such an extent that the return for people like YOU   is minimal at best. It is YOU who desperately need support  to assist YOU living with dementia. But they neglect to deliver this
13. they diminishes the funding pot through duplication
14. they do not readily embrace inclusive strategies for progress in dementia and alzheimer’s health care
15. they are certainly not interested in  outsiders like us. It is people like us  who can make a valuable and instant contribution to dementia care and support
16. most work in isolation not knowing what others are doing. We found that people even in the same university in the same area of research did not know about the others existence
17. new organisations are created but they are made up of the same people. Who in the past seldom deliver for YOU. So how do they think they can do things differently

These facts can only be presented by an outsider who has experienced and researched on YOUR behalf what is actually happening. I have no hidden agenda for keeping the status quo.

This to an outsider looking in is disgusting. I do however accept that research comes in many guises. Some research has a greater focus on YOUR needs than others, but most see YOUR needs as very much secondary to their empire building. There is pure research as a process, there is developmental research building on previous work etc. There should be at the head of the list research for dementia that actually strives to deliver tangible support in all forms. Meeting the needs for people living with dementia and their carers each year.

Research states that there is a crisis in dementia. There sure is. The crisis is how unsatisfactory the present research closed shop fraternity is. They are experts in looking after their own interest above people like YOU  living with dementia. Just what people like me could do with  50% of £16.5 million each year since the year 2000. We would ensure that there was no crisis in dementia and alzheimer care.  YOU and YOUR loved one would have the support and resources you urgently and desperately require.

Innovators like me are not going away

The clique in research is mainly driven by self-perpetuation and focus. They want to keep the status quo in funding and output. That approach does not accommodate people like me who have

1. a tangible new digital 21 century non drug non-invasive very cost effective validated reminiscence film therapy accessible 24/7
2. self-funded the development over three years because I do not fit the 19 century funding models which perpetuate in dementia research.

The research and development of my dementia intervention has taken me 3 years full time work and utilised over 5 hours of my heritage film assets. This is at the least a cost of two hundred and thirty thousand pounds which I have had to fund myself. How can this be acceptable.

We have produced our therapy without any charitable donations

I have not had any support funding from any of the research groups who know about my work. That is why I must charge a minimal cost for each of our clips. I had hoped to get support so that I could provide the clips free of charge to you. I am always on the look out for sponsorship from people or companies for my work. If you know of a potential sponsor contact me here